THE BRUGADA SYNDROME FOUNDATION CIC
The Brugada Syndrome Foundation CIC is dedicated to raising awareness, supporting people affected by Brugada Syndrome and helping individuals, families and communities access clear and responsible information.
Clear and accessible information can help individuals and families better understand Brugada Syndrome, possible warning signs, diagnosis and management.
Brugada Syndrome is a heart rhythm disorder associated with abnormal electrical activity in the heart.
Many people with the condition have no symptoms, but in some individuals it can increase the risk of dangerous abnormal heart rhythms.
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Many people with Brugada Syndrome experience no symptoms.
When symptoms occur, they may include fainting or blackouts, palpitations and dizziness. Dangerous abnormal heart rhythms can sometimes lead to cardiac arrest.
Anyone concerned about symptoms or family history should seek advice from an appropriate healthcare professional.
Assessment commonly includes an electrocardiogram (ECG) and specialist review.
Depending on an individual's circumstances, clinicians may recommend additional investigations. A healthcare professional can advise on the most appropriate assessment for an individual or family.
There is currently no cure for Brugada Syndrome, but the condition can be managed.
Management depends on individual risk and circumstances and may include monitoring, precautions and, for some higher-risk people, specialist treatment.
Our work focuses on bringing useful information, heart-health awareness and support into communities while helping more people understand Brugada Syndrome.
Educational resources, awareness sessions and community activities designed to improve understanding of Brugada Syndrome.
Working with communities and organisations to encourage heart-health awareness, informed conversations and appropriate follow-up.
Helping people affected by Brugada Syndrome access information, guidance and a supportive community.
Building relationships with community groups, organisations and professionals to extend awareness, education and support.
We believe awareness is most effective when clear information reaches people where they live, meet and connect. Our activities help bring conversations about Brugada Syndrome and heart health closer to individuals, families and communities.
A diagnosis, suspected diagnosis or family history can create many questions. Our foundation aims to provide accessible information, awareness and compassionate support for people affected by Brugada Syndrome.
The syndrome was formally described in 1992 following recognition of characteristic clinical and ECG findings. Continued research has since expanded understanding of its diagnosis, genetics and management.
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Since its formal description, specialists and researchers have continued to improve understanding of diagnosis, risk assessment and management.
Everyone deserves hope, awareness, and support. By uniting our efforts—through education, research, and compassionate care—we're transforming lives affected by Brugada Syndrome.
Your support fuels vital research, raises awareness, and brings hope to those living with this condition. Whether through donations, advocacy, or partnership, every action brings us closer to a healthier, more informed community.
Your support changes lives. Every donation, big or small, helps us provide vital care, raise awareness, and fund research for Brugada Syndrome. Act now—together, we can bring hope to those who need it most.
We are a not-for-profit organisation raising awareness, providing support, and funding research for Brugada Syndrome—a rare but serious heart rhythm condition.
Our mission is to support people affected by Brugada Syndrome through education, advocacy, and research. We aim to improve early diagnosis, advance treatment, and build a supportive community.
Delivering educational programmes and resources Offering direct support to individuals and families Raising public awareness Funding medical research to improve diagnosis and treatment
You can donate securely through our website using Stripe. Every contribution supports vital research, outreach, and support for patients and families.
