1
Raise public awareness
Increase understanding of Brugada syndrome among the general public, so that unexplained fainting and a family history of sudden death are recognised as reasons to seek medical assessment.
Our Objectives
Clear objectives keep our work focused, and let people judge us on what we said we would do.
What we set out to do
Six objectives that shape everything we do
Each one is measurable, and each one answers the same question: does this help somebody find out sooner?
2
Provide clear information
Produce and share plain-language information about the condition, its symptoms, how it is diagnosed and how it is managed day to day.
3
Support individuals and families
Offer practical guidance and a supportive community for people who are newly diagnosed, awaiting screening, living with a device, or bereaved.
4
Encourage early recognition
Work with communities and professionals to encourage timely assessment, because early identification remains the most effective protection available.
5
Build partnerships
Collaborate with community organisations, faith centres, schools, employers and healthcare professionals to extend our reach.
6
Support research
Help connect people with research and registries that improve how individual risk is understood and assessed.
Help us reach the next family in time
Awareness work only counts when it reaches somebody who did not know. If you can help it travel further, we would like to hear from you.
In an emergency
If a person collapses and is not breathing normally, call your local emergency number immediately, begin CPR, and send someone for the nearest defibrillator.
