Our team
The people behind the Foundation, and the clinicians and partners who work alongside us.
Who we are
A small team with a clear purpose
Ambassadors
Our ambassadors
People who carry the Foundation’s message into their own communities, workplaces and networks.
Volunteers
The people who make it possible
Most of our volunteers give a few hours a month, and full support is provided for every role — helping at awareness events, speaking to community groups, or supporting families who have just been diagnosed.
Interested in joining us?
We are always glad to hear from people who would like to help with awareness work in their own community.
In an emergency
If a person collapses and is not breathing normally, call your local emergency number immediately, begin CPR, and send someone for the nearest defibrillator.
