Our work
Awareness, education and support delivered where people already are — in communities, faith centres, schools and workplaces.
Awareness and education
Talks, Educational Sessions and materials
At The Brugada Syndrome Foundation, we believe that knowledge can save lives. Our awareness talks and educational sessions help communities understand Brugada syndrome and other inherited heart conditions.
We have delivered awareness sessions at Guru Nanak Gurdwara Smethwick, Bebe Nanaki Gurdwara Handsworth, and Baba Deep Singh Ji Gurdwara Handsworth, helping families and community members learn about the condition, the importance of family history, potential warning signs, and when to seek appropriate medical advice.
We have also delivered an educational session at Kings Court Hotel, Alcester, for healthcare professionals, supporting greater understanding and awareness of Brugada syndrome within the healthcare community.
We produce printed guides, leaflets and awareness materials, and we hand them out at every event we run.
One conversation can create awareness. One informed family can make a difference. And that awareness could save a life.
Community awareness sessions
Working through trusted places
Awareness travels furthest through the places people already trust. That is why we go to communities rather than expecting them to come to us.
Support for individuals and families
Someone to talk to who understands
We support people who are newly diagnosed, waiting for screening results, adjusting to an implanted device, or bereaved.
Gallery
Our work in pictures
Photographs from awareness sessions, community events and the people who make the work possible.
Invite us to come to your community
We deliver awareness sessions for community groups, faith centres, schools and workplaces. Tell us about yours.
In an emergency
If a person collapses and is not breathing normally, call your local emergency number immediately, begin CPR, and send someone for the nearest defibrillator.
